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| Name |
Children's Gaucher Research Fund |
| Purpose |
The Children's Gaucher Research Fund is a non-profit organization that raises funds to coordinate and support research aimed at finding a cure for Gaucher disease (Type 2 and Type 3) as well as providing support to families who have children who battle this disease. Type 2 and Type 3 Gaucher disease is a progressive debilitating genetic disease which attacks children, causing a variety of systemic and neurological medical complications. |
| Goal |
Find a cure for Type 2 and Type 3 Gaucher disease. |
| Background |
Gregory and Deborah Macres are the founders of the Children's Gaucher Research Fund. Their son Gregory, born January 29, 1993, passed away on April 13, 1997, due to Type 3 Gaucher disease. |
| Use Of Funds |
100% of all donations go directly to medical research on the neuronopathic form of Gaucher disease, Type 2 and Type 3. There are no salaries. There are no administrative costs. All costs for postage, printing, web site development, etc. are either donated, or paid for by the founders. |
| Research Grant |
Research grants will be awarded exclusively for research on Type 2 and Type 3 Gaucher disease. Grant proposals will be considered from any accredited medical research institution in the world. |
| Grant recommendations will be made by the Scientific Advisory Board, using the guidelines of excellence, relevance, and efficient use of funds. |
| Contact |
Gregory and Deborah Macres
8110 Warren Court, Granite Bay, California 95746, USA
Telephone 916.797.3700, Fax 916.797.3707
email: research@childrensgaucher.org |
| Tax ID |
501 (c) (3) Non-profit status, Tax ID# 94-3326753 |
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Click here to donate
100% of all donations go directly to Gaucher Disease medical research
Children's Gaucher Disease Research Fund
P.O. Box 2123, Granite Bay, California 95746-2123 USA research@childrensgaucher.org
The content on the Children's Gaucher Research Fund Web site is for informational purposes only and should not be used for making medical decisions or as a substitute for speaking with a knowledgeable physician. Information about or links to third parties does not imply endorsement by the Children's Gaucher Research Fund.
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