Family Stories

Angel from the Beginning:
Emma Pozzobon

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Emma was an angel from the very beginning. When I was pregnant with her I knew she was special and was going...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

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Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Gaucher Progress – Parkinson’s Progress … Tony Futerman PhD

Tony Futerman Ph.D. Weizmann Institute of Science, Isreal

“It is with extreme gratitude that I once again acknowledge the fantastic support of the Children’s...

Research Update:
Tony Futerman P...

Tony Futerman Ph.D. Weizmann Institute of Science, Isreal

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

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On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

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In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

Born January 29, 1993

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...

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