Family Stories

Living with Gaucher:
Emily Filomena Schiavone

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Call for Research
Mechanism of neuronopthic Gaucher disease

Call for Research<br />Mechanism of neuronopthic Gaucher disease

$75,ooo to $100,000 Research Funding … January – December 2016 …Limited to US based...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Sponsor the Macres
“Heav...

Sponsor the Macres <br /> “Heaven Birthday Ride”

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...

$300,000 of Research
Funded by...

$300,000 of Research <br /> Funded by CGRF

Twelve reviewers from around the world freely offered their expertise – giving of their time and knowledge to help...

CGRF Considers
$500,000 in Resea...

CGRF Considers<br />$500,000 in Research

Children’s Gaucher Research Fund reviews $300,000 to $600,000 in new research...

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