Family Stories

Our Little Angel:
Joseph DeFacci

Our Little Angel:<br />Joseph DeFacci

Joseph Edilio DeFacci’s story begins on February 24, 1993 at 2:10 pm. Our first child came into this...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

John Barranger
Memorial Research Grant

John Barranger<br />Memorial Research Grant

Established and Funded by Sanofi Genzyme Corporation…We thank Sanofi Genzyme for their selfless gesture...

2nd Annual Willow Jaynes
Memoria...

2nd Annual Willow Jaynes<br />Memorial Dice Run

Jason and Amber Jaynes honor the legacy of their daughter Willow Ansley Jaynes. A motorcycle Dice Run raises funds for...

Research Update:
Tony Futerman P...

Research Update:<br />Tony Futerman Ph.D.

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

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