Family Stories

An Inspiration To Us All:
Cameron Watson

An Inspiration To Us All:<br />Cameron Watson

After several medical “false alarms” during my pregnancy, our son Cameron Robert was born on...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Important Scientific Discovery
…funded by CGRF

Important Scientific Discovery<br />…funded by CGRF

Published in Nature Medicine – CGRF funding of research with Tony Futerman PhD, of the Weizmann...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

Sponsor the Macres <br /> “Heaven Birthday Ride”

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...

$300,000 of Research
Funded by...

$300,000 of Research <br /> Funded by CGRF

Twelve reviewers from around the world freely offered their expertise – giving of their time and knowledge to help...

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