Family Stories

Courageous Chase
Chase Edward Warren

Courageous Chase<br />Chase Edward Warren

On October 1, 2012, our dream finally came true, Chase Edward Warren was born. Our perfect healthy son or so...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Call for Research
Mechanism of neuronopthic Gaucher disease

Call for Research<br />Mechanism of neuronopthic Gaucher disease

$75,ooo to $100,000 Research Funding … January – December 2016 …Limited to US based...

History of the CGRF
by Raphael S...

History of the CGRF<br />by Raphael Schiffmann M.D., M.HSc.

Dr. Raphael Schiffmann, Chairman of our Scientific Advisory Board, was instrumental in supporting the creation of the...

2nd Annual Willow Jaynes
Memoria...

2nd Annual Willow Jaynes<br />Memorial Dice Run

Jason and Amber Jaynes honor the legacy of their daughter Willow Ansley Jaynes. A motorcycle Dice Run raises funds for...

Research Update:
Tony Futerman P...

Research Update:<br />Tony Futerman Ph.D.

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

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