Family Stories

A Heart Larger Than Life:
James Tyler Cooper

A Heart Larger Than Life:<br />James Tyler Cooper

I believe God answers all our prayers in ways he sees fit. It seems to me that I never really questioned his...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Parkinsons Gaucher story
by Ellen Sidransky M.D.

Parkinsons Gaucher story<br />by Ellen Sidransky M.D.

Dr. Sidransky won’t say it but it feels like vindication. After years of research … arguing there...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

Sponsor the Macres <br /> “Heaven Birthday Ride”

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...

$300,000 of Research
Funded by...

$300,000 of Research <br /> Funded by CGRF

Twelve reviewers from around the world freely offered their expertise – giving of their time and knowledge to help...

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