Family Stories

Living with Gaucher:
Valerie Yannias

Living with Gaucher:<br />Valerie Yannias

She is sweet, adorable and she has Type III Gaucher Disease. It was March 4, 1998, when we learned that our...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Sanofi Genzyme
Phase 2 Clinical Trial

Sanofi Genzyme<br />Phase 2 Clinical Trial

Sanofi Genzyme’s Phase 2 Clinical Trial to Evaluate Oral Substrate Reduction Therapy for Gaucher Disease...

Is There A Link
Parkinson’...

Is There A Link<br />Parkinson’s & Gaucher?

Circa 2005 … Lone voice calls for Parkinson’s – Gaucher connection … Dr. Ellen Sidransky...

Brandon Ray Buckler
2nd Annual M...

Brandon Ray Buckler<br />2nd Annual Memorial Rodeo

Our goal: to help find a cure and bring community awareness about the disease, that took the life of Brandon Ray...

Mustard Seed Mountain
Preface by...

Mustard Seed Mountain<br />Preface by Deborah Macres

It was late one evening as I was reading some of the notes that often accompany donations to the CGRF. I was...

Development Plan
FDA and EMA App...

Development Plan<br />FDA and EMA Approval

Gregory Grabowski M.D. explains the importance of our latest initiative. The CGRF has assembled a working group who...

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