Family Stories

Living with Gaucher:
Victoria Villar

Living with Gaucher:<br />Victoria Villar

I want to have a little sister said Maria. All her friends had siblings they could play with and she wanted...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Parkinsons Gaucher story
by Ellen Sidransky M.D.

Parkinsons Gaucher story<br />by Ellen Sidransky M.D.

Dr. Sidransky won’t say it but it feels like vindication. After years of research … arguing there...

A Meeting of the Minds
Dr. Ahad ...

A Meeting of the Minds<br />Dr. Ahad A. Rahim

Hosted by the Children’s Gaucher Research fund, Dr. Ahad A. Rahim from University College London explains the...

History of the CGRF
by Raphael S...

History of the CGRF<br />by Raphael Schiffmann M.D., M.HSc.

Dr. Raphael Schiffmann, Chairman of our Scientific Advisory Board, was instrumental in supporting the creation of the...

2nd Annual Willow Jaynes
Memoria...

2nd Annual Willow Jaynes<br />Memorial Dice Run

Jason and Amber Jaynes honor the legacy of their daughter Willow Ansley Jaynes. A motorcycle Dice Run raises funds for...

Research Update:
Tony Futerman P...

Research Update:<br />Tony Futerman Ph.D.

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

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