Family Stories

Enomoto Story:
Elsa and Grace Enomoto

Enomoto Story:<br />Elsa and Grace Enomoto

We are writing to express our gratitude for your work on researching Type 2 and 3 Gaucher’s Disease and...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Brandon Ray Buckler
2nd Annual Memorial Rodeo

Brandon Ray Buckler<br />2nd Annual Memorial Rodeo

Our goal: to help find a cure and bring community awareness about the disease, that took the life of Brandon...

2nd Annual Willow Jaynes
Memoria...

2nd Annual Willow Jaynes<br />Memorial Dice Run

Jason and Amber Jaynes honor the legacy of their daughter Willow Ansley Jaynes. A motorcycle Dice Run raises funds for...

Research Update:
Tony Futerman P...

Research Update:<br />Tony Futerman Ph.D.

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

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