Family Stories

Living with Gaucher:
Emily Filomena Schiavone

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Wheatley’s Honor Their Son<br />Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Important Scientific Discovery
…funded by CGRF

Important Scientific Discovery<br />…funded by CGRF

Published in Nature Medicine – CGRF funding of research with Tony Futerman PhD, of the Weizmann...

Is There A Link
Parkinson’...

Is There A Link<br />Parkinson’s & Gaucher?

Circa 2005 … Lone voice calls for Parkinson’s – Gaucher connection … Dr. Ellen Sidransky...

Brandon Ray Buckler
2nd Annual M...

Brandon Ray Buckler<br />2nd Annual Memorial Rodeo

Our goal: to help find a cure and bring community awareness about the disease, that took the life of Brandon Ray...

Mustard Seed Mountain
Preface by...

Mustard Seed Mountain<br />Preface by Deborah Macres

It was late one evening as I was reading some of the notes that often accompany donations to the CGRF. I was...

Development Plan
FDA and EMA App...

Development Plan<br />FDA and EMA Approval

Gregory Grabowski M.D. explains the importance of our latest initiative. The CGRF has assembled a working group who...

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