“Join Me” Letter

Become a champion of the Children’s Gaucher Research Fund by sharing your commitment. Use this letter, inviting friends to join you in the cause to find a cure for Gaucher Disease.

Dear Friends,

We hope this letter finds you well. We are writing to share with you a commitment we have made. We have joined hands with families from across America. Our goal: to find a cure for the disease that took the life of [name of child].

As you know, we lost [name of child] to Gaucher Disease on [date]. The pain of losing a child is indescribable. We are grateful for the time we were able to spend with [him] during [his] short life. The loss that we suffered just reminds us of what is most important in our lives. [Child’s name] is a source of strength to us not only in life, but in death as well. [His] courage and attitude in the face of adversity is an inspiration to us and to everyone who had the joy of knowing [him]. It is with this spirit that we want to help breathe life into other children whom suffer from this terrible disease. We know that [child’s name] is encouraging us to find a cure.

It is very difficult to write this letter. However, knowing how we may help children in the future is very encouraging. We would ask that you consider these four points:

1. 100% of donations go directly to medical research. There are no salaries. There are no administrative costs. All costs for postage, printing, web site development, etc. are either donated, or paid for by the founders.

2. This is a grassroots effort. Parents from across the nation — and beyond — are working together to raise funds for medical research.

3. These are children, who only ask to have a chance at life. As a group of parents, we are willing to fight the battle.

4. It has been said that the 21st century is the century of the brain. Our research will have overlapping benefits; benefiting a host of adult and childhood diseases, that affects the brain.

We believe one of CGRF’s donors said it best:

“Over the years of my life, I have sporadically donated time and money to various causes. I never really found a charity I could adopt, a charity I could believe in, one that captured my heart. We have all heard stories about charitable causes where only a small percentage of donated funds are applied to the charity itself. In the past, this has given me cause for concern and has made me cautious. I was never able to find a charity that I could call, my ‘Charity of Choice.’ I have been taken by your efforts and your commitment. I am proud to choose the Children’s Gaucher Research Fund as my charity of choice.”

Please visit www.ChildrensGaucher.org to read through our family’s story and those of other families who have battled Gaucher Disease. If you feel a personal connection, as we do, we ask that you consider making the Children’s Gaucher Research Fund your “charity of choice.” Your contribution helps grow the fund to find a cure for this devastating disease. Our family will be a part of the Children’s Gaucher Research Fund until a cure is found.

“The Only Thing Incurable Is Our Passion”


[Your Name]