Sanofi Genzyme
Funds Important Research

Med Research 07

We thank Sanofi Genzyme for establishing the John Barranger Memorial Research Grant and entrusting the CGRF with the...

Sanofi Genzyme
Phase 2 Clinical Trial

Med Research 06

Sanofi Genzyme’s Phase 2 Clinical Trial to Evaluate Oral Substrate Reduction Therapy for Gaucher Disease Type 3...

Sweet Willow:
Willow Ansley Jaynes

Willow001

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

CGRF Considers
$500,000 in Research

Shire-Lab

Children’s Gaucher Research Fund reviews $300,000 to $600,000 in new research...

Living with Gaucher:
Kristina C.

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We write this in 2010 and our daughter, Kristina, is now 23 and has just finished her second year in law school, is on...

Graphics needs and specifications

website header image: page width: 950px header height: 40px (top menu) + 80px (header) = 120px note: the header...

CGRF Site Admin Guide

Links: http://codex.wordpress.org/Writing_Posts Continue reading

Still to be done…

I’m altering the body of this post here CGRF WEBSITE REMAINING TASKS TYPOGRAPHY CSS * font size & color *...

Lysosomal Brain Conference

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For Families New to Gaucher

Receiving the unexpected diagnosis that your child has a rare, debilitating disease with no cure — there are no...

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