Sweet Willow:
Willow Ansley Jaynes
On January 8, 2009 I found out I was pregnant. I was very excited and nervous at the same time. This would be my...
Living with Gaucher:
Emily Filomena Schiavone
In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...
Remembering Josephine:
Josephine Rose Lampitt
The Lampitt’s family story was featured in the February 2010 edition of The Health Journal. Read the article at...
Little Miss Hannah:
Hannah Ostrea
Hannah’s Story was featured in the February 2010 issue of The Scientist and the Spring 2010 issue of...
Enomoto Story:
Elsa and Grace Enomoto
We are writing to express our gratitude for your work on researching Type 2 and 3 Gaucher’s Disease and support for...
Baby Aaliyah:
Aaliyah Heinzelman
We are writing to share with you a commitment we have made. We have joined hands with families from across America....
Living with Gaucher:
Danielle Loncharich
Let us introduce ourselves: we are Rick (dad) and Gloria (mom) Loncharich. We would like to tell you about our...
Living with Gaucher:
Valerie Yannias
She is sweet, adorable and she has Type III Gaucher Disease. It was March 4, 1998, when we learned that our two year...
An Inspiration To Us All:
Cameron Watson
After several medical “false alarms” during my pregnancy, our son Cameron Robert was born on September 14,...
Living with Gaucher:
Victoria Villar
I want to have a little sister said Maria. All her friends had siblings they could play with and she wanted one too....
Our Little Princess:
Mikkey Timmer
This is the story of our little princess Mikkey Wilhelmina Aaltje Timmer, we called her Mikkey. On June 11th, 1999 our...
A Life of Hope:
Noah Jerome Shaffer
Noah Jerome Shaffer blessed our lives with his arrival on October 5, 1999. He was a healthy 7 lbs. 91/2 oz. and...
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