Family Stories

Enomoto Story:
Elsa and Grace Enomoto

Enomoto Story:<br />Elsa and Grace Enomoto

We are writing to express our gratitude for your work on researching Type 2 and 3 Gaucher’s Disease and...

Fundraising Ideas

2nd Annual Willow Jaynes
Memorial Dice Run

2nd Annual Willow Jaynes<br />Memorial Dice Run

Jason and Amber Jaynes honor the legacy of their daughter Willow Ansley Jaynes. A motorcycle Dice Run raises...

Recent News

Research Update:
Tony Futerman Ph.D.

Research Update:<br />Tony Futerman Ph.D.

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the...

Sweet Willow:
Willow Ansley Jayn...

Sweet Willow:<br />Willow Ansley Jaynes

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

Living with Gaucher: <br />Emily Filomena Schiavone

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

Sponsor the Macres <br /> “Heaven Birthday Ride”

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...

$300,000 of Research
Funded by...

$300,000 of Research <br /> Funded by CGRF

Twelve reviewers from around the world freely offered their expertise – giving of their time and knowledge to help...

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